serafaery: (purple fae)
Those who've faught harder battles than I could ever imagine, I love and admire and miss you so very much.

YouTube link of Eva singing.
serafaery: (Default)
Those who've faught harder battles than I could ever imagine, I love and admire and miss you so very much.

YouTube link of Eva singing.

Sweet Eva.

Mar. 27th, 2010 08:50 pm
serafaery: (Default)
Eva, beautiful beautiful Eva, died this morning.

It feels so empty, death. Like someone turning off a light.

It's so sad but I have to remember that I'm so very lucky that I ever stumbled upon her journal in the first place. I feel unworthy of the minuscule friendship she and I developed years ago - ashamed of taking even a moment of her thought and energy when she had so much else to do and such a short amount of time. She was 23. Would have been 24 on March 31st.

She has inspired me and honestly changed my life in a hugely positive way. My Gratitude Lists started in reaction to her bravery and spirit, the way she lived above petty concerns the rest of us have the luxury of debasing ourselves with, if we're not careful.

I'm more careful, to love and appreciate and enjoy life, in every moment, thanks to her.

...

This video was posted on her journal this evening with the following text:

"Eva receives the 2010 Summerhayes Award in room 450 at Vancouver General Hospital. Presented by Leona Pinsky and Sterling Aurel to honour Eva's work on behalf of the Canadian Cystic Fibrosis Foundation both in fundraising and CF awareness."

This is a movie that was just edited by Justin last night. We would like to share it because Eva states so eloquently her position on organ donation and Cystic Fibrosis awareness and that this will become such a major part of her legacy.


Sweet Eva.

Mar. 27th, 2010 08:50 pm
serafaery: (Default)
Eva, beautiful beautiful Eva, died this morning.

It feels so empty, death. Like someone turning off a light.

It's so sad but I have to remember that I'm so very lucky that I ever stumbled upon her journal in the first place. I feel unworthy of the minuscule friendship she and I developed years ago - ashamed of taking even a moment of her thought and energy when she had so much else to do and such a short amount of time. She was 23. Would have been 24 on March 31st.

She has inspired me and honestly changed my life in a hugely positive way. My Gratitude Lists started in reaction to her bravery and spirit, the way she lived above petty concerns the rest of us have the luxury of debasing ourselves with, if we're not careful.

I'm more careful, to love and appreciate and enjoy life, in every moment, thanks to her.

...

This video was posted on her journal this evening with the following text:

"Eva receives the 2010 Summerhayes Award in room 450 at Vancouver General Hospital. Presented by Leona Pinsky and Sterling Aurel to honour Eva's work on behalf of the Canadian Cystic Fibrosis Foundation both in fundraising and CF awareness."

This is a movie that was just edited by Justin last night. We would like to share it because Eva states so eloquently her position on organ donation and Cystic Fibrosis awareness and that this will become such a major part of her legacy.


Creation.

Oct. 23rd, 2007 10:56 pm
serafaery: (horns)
My darling [livejournal.com profile] 65redroses is getting her long-awaited lung transplant tonight. (She has cystic fibrosis, and is a most beautiful sparkly fire fairy spirit.) Clinging to hope for strength, health, and a long happy future for her.

With Eva and the wildfires, my little challenges with my cat seem so minuscule. But the little things matter, too. It's all life. It's all amazing and fascinating and wonderful and terrifying and never, ever boring.

Took Skot to a Zombie FX event at school today. I was made into the scariest, ugliest zombie imaginable. I could hardly look at my reflection, it was so scary. Totally fun. Not an experience I will soon forget. Can't wait for the Zombiewalk on Saturday! *bounce*

Skot thanked me profusely on the way home, and said he felt like he's been introduced, through me, to a world he should have always been a part of. It wouldn't have occurred to me not to ask him, and it was such a sweet sentiment. He wants to do the walk with me and Trevor. I love it. Play! Play is so important. Play and bliss and passion and free expression. There's not much better in this life.

...

Mom and I were talking about Willow last night, and my heartache over treating her, and what this is all for. She said a lovely thing about it being not just for her, and not just for me, but for the union of she and I together - that love, that bond, that is a unique, special thing worth saving. It made me feel so intimately close with my mom, just then. Like I really am 1/2 her, like we are alike in essence - we have a particular essence in common that exists nowhere else but within the two of us. I felt this sensation when my ex was breaking up with me - that I was losing not only our companionship, but a relationship that was more than just the two of us; a third thing that we had created together. It reminds me of that small, lovely conversation in Hedwig and the Angry Inch, when Hedwig and Tommy are discussing love as not just procreation, not just recreation, but maybe just: creation.

Creation.

Oct. 23rd, 2007 10:56 pm
serafaery: (Default)
My darling [livejournal.com profile] 65redroses is getting her long-awaited lung transplant tonight. (She has cystic fibrosis, and is a most beautiful sparkly fire fairy spirit.) Clinging to hope for strength, health, and a long happy future for her.

With Eva and the wildfires, my little challenges with my cat seem so minuscule. But the little things matter, too. It's all life. It's all amazing and fascinating and wonderful and terrifying and never, ever boring.

Took Skot to a Zombie FX event at school today. I was made into the scariest, ugliest zombie imaginable. I could hardly look at my reflection, it was so scary. Totally fun. Not an experience I will soon forget. Can't wait for the Zombiewalk on Saturday! *bounce*

Skot thanked me profusely on the way home, and said he felt like he's been introduced, through me, to a world he should have always been a part of. It wouldn't have occurred to me not to ask him, and it was such a sweet sentiment. He wants to do the walk with me and Trevor. I love it. Play! Play is so important. Play and bliss and passion and free expression. There's not much better in this life.

...

Mom and I were talking about Willow last night, and my heartache over treating her, and what this is all for. She said a lovely thing about it being not just for her, and not just for me, but for the union of she and I together - that love, that bond, that is a unique, special thing worth saving. It made me feel so intimately close with my mom, just then. Like I really am 1/2 her, like we are alike in essence - we have a particular essence in common that exists nowhere else but within the two of us. I felt this sensation when my ex was breaking up with me - that I was losing not only our companionship, but a relationship that was more than just the two of us; a third thing that we had created together. It reminds me of that small, lovely conversation in Hedwig and the Angry Inch, when Hedwig and Tommy are discussing love as not just procreation, not just recreation, but maybe just: creation.

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