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Have had a very difficult day. Getting Josh around to appts while he is on crutches is time consuming and draining. I have had a headache for two days straight. I have been stress-eating like whoah, I can't even care. My newly acquired arthritis is in a flare, I think just from stress, and also my awareness of my condition, now that it is so visible.
But I got some work done, got a walk with Cynthia and Hanne this morning thank goodness, made some tiramisu chia stuff (it's not that good but it was fun to try anyway), no packing has happened but we have a late-ish flight in the morning so if I have to pack in the morning that's okay, it's only 7:15pm so I still have a chance to at least get started tonight, I just wish I'd washed some things. Fortunately it'll be warm there and it's been cold here so I should have warm weather clothes that are unused floating around somewhere, even if I've burned through all my sweaters and wool socks.
Joshua Tree
Sat clear 65° 48°
Sun clear 69° 51°
Mon clear 72° 55°
Tue clear 74° 58°
Wed clouds 74° 60° (we're going to Palm Springs this day anyway, we check out of J Tree in the morning and visit PS a bit before flying out, it will be warmer and sunnier there)
vs here, Portland, OR:
Sat rain 54° 47°
Sun rain 55° 49°
Mon rain 53° 47°
Tue rain 54° 46°
Wed clear 62° 42°
Yaaaaaaaaaay so grateful.
I will miss my cat though. I am grateful Orvis loves her so much and will visit her diligently while I am away. Poor bb. My little velcro kitten.
I could watch Maru all day. Avalanche is shaped the same as him, and also lazily lies around on her back all of the time.
...
I have been trying to self-educate and self-medicate regarding my osteoarthritis, just starting with youtube, I know this is not recommended but I literally cannot get in to see a doctor so I am just doing what I can while stuck without care. I am so sick and tired of young people trying to educate about this stuff. it is like listening to a 30 year old talk about menopause. I have absolutely zero interest in hearing about this condition from someone who has never experienced it. I am learning that it is untreatable, it is something that you can only deal with by mitigating symptoms. I get that. I imagine for the most part for me it will just be trial and error to figure out activities that work and don't work, trying out different splints for my hands to see what makes the pain worse vs better, etc. Also as always, paying attention to inflammatory foods and such.
There are times when this feels like absolute hell. Last night I could not even lift my tea cup with one hand. It feels like such a betrayal of my body. I am less and less tolerant of the cold. It is scary and it feels like dying. But other times, it just feels like another everyday normal part of being mortal, and I am grateful for every moment that does not hurt.
Aging is not for the weak. Especially with painful inherited genetic conditions.
I am. SO GLAD. I do not have children.
But I got some work done, got a walk with Cynthia and Hanne this morning thank goodness, made some tiramisu chia stuff (it's not that good but it was fun to try anyway), no packing has happened but we have a late-ish flight in the morning so if I have to pack in the morning that's okay, it's only 7:15pm so I still have a chance to at least get started tonight, I just wish I'd washed some things. Fortunately it'll be warm there and it's been cold here so I should have warm weather clothes that are unused floating around somewhere, even if I've burned through all my sweaters and wool socks.
Joshua Tree
Sat clear 65° 48°
Sun clear 69° 51°
Mon clear 72° 55°
Tue clear 74° 58°
Wed clouds 74° 60° (we're going to Palm Springs this day anyway, we check out of J Tree in the morning and visit PS a bit before flying out, it will be warmer and sunnier there)
vs here, Portland, OR:
Sat rain 54° 47°
Sun rain 55° 49°
Mon rain 53° 47°
Tue rain 54° 46°
Wed clear 62° 42°
Yaaaaaaaaaay so grateful.
I will miss my cat though. I am grateful Orvis loves her so much and will visit her diligently while I am away. Poor bb. My little velcro kitten.
I could watch Maru all day. Avalanche is shaped the same as him, and also lazily lies around on her back all of the time.
...
I have been trying to self-educate and self-medicate regarding my osteoarthritis, just starting with youtube, I know this is not recommended but I literally cannot get in to see a doctor so I am just doing what I can while stuck without care. I am so sick and tired of young people trying to educate about this stuff. it is like listening to a 30 year old talk about menopause. I have absolutely zero interest in hearing about this condition from someone who has never experienced it. I am learning that it is untreatable, it is something that you can only deal with by mitigating symptoms. I get that. I imagine for the most part for me it will just be trial and error to figure out activities that work and don't work, trying out different splints for my hands to see what makes the pain worse vs better, etc. Also as always, paying attention to inflammatory foods and such.
There are times when this feels like absolute hell. Last night I could not even lift my tea cup with one hand. It feels like such a betrayal of my body. I am less and less tolerant of the cold. It is scary and it feels like dying. But other times, it just feels like another everyday normal part of being mortal, and I am grateful for every moment that does not hurt.
Aging is not for the weak. Especially with painful inherited genetic conditions.
I am. SO GLAD. I do not have children.
